X-Linked Myotubular Myopathy (XLMTM)

I recently attended the 2017 National Animal Interest Alliance (NAIA) Conference, titled “Animal Nation.”  There, I heard the remarkable, heart-wrenching but uplifting story about the life of Joshua Frase and the challenges he overcame with the support from his family who never gave up in their relentless search to find a cure for Myotubular Myopathy